Sunday, May 8, 2011

Update

I survived the developing-country-film-shoot but barely. I was great for a few days but the unfamiliar food, lack of sleep and stress got to me. I had to skip a few meals but I made it out alive. The experience was amazing and I'm so glad to have had the opportunity. I ended up doing everything but taking photos, but it is a week (and a half) that I will always remember fondly.

The shoot came two weeks after my first skipped dose of Humira. I realize now that it was stupid to miss a dose but, at the time, I was feeling great and thought I would be fine missing one little injection. It was March and I was on my third Humira refill of the year. My insurance company had still not given me back a penny for 2011. I harassed them for weeks and made absolutely no progress. Each of my calls were met by a new diversion or straight up lie. Unending frustration. I had shelled out close to $6k for the year with no proof that I would ever see any reimbursement and I could not afford to spend another $2k, so I skipped it. A few hours before my flight, the insurance check arrived in the mail. Too little, too late.

I will never know if the trip would have been Crohn's free had I taken the Humira before I left. I will never know if I would have been ok skipping a dose if I were eating and sleeping comfortably at home. I do know that I felt much better a few days after I stuck myself upon my return. Thanks again, Humira.

I took three trips in the four weeks following the shoot and I can't say I was in good health. Flying kills my stomach. I don't know why. Even a short, one hour flight is enough to put my guts in knots. An even bigger problem is sticking to my regular food routine once I arrive at my destination. It's just impossible. Hopefully one day I will figure it out but, for now, for me, traveling means suffering. It's totally worth it.

Sunday, March 20, 2011

Apologies

I've totally bailed on this blog. I really don't have the time. I hope that changes soon. I am sorry.

Truth is, I barely have time to tie my shoes these days. I am so thankful that I am this busy. I am blessed. I get to experience things that many people never will. I get to access some of the most amazing stores, restaurants, museums, people, buildings (and on, and on) in the world. I really feel like I need to make up for the last several years of my life when I lived in the most amazing city in the world but spent all of my spare time at home. I am hungry for life.

I am leaving tomorrow to shoot stills on a film shoot. I'm traveling to a country where the food and the plumbing may not be safe. I could not have done this a year ago. I'm so thankful.

Sunday, September 26, 2010

Decisions, Decisions

I don't know what happened. I feel like I am stuck in some sort of time warp or something. Are there really only four days left in September?

Since I've been feeling better I feel like I've been going at life full speed. I've been out of town most weekends this year which has been great but exhausting. I'm doing much more socially and otherwise, and it feels really good. Then there's this whole wedding planning thing...

Since we've been engaged we've been making plans (then changing those plans (over and over)). Everyone wants to know how it's going, what we're planning, how far we've gotten, what's the date, where's the wedding, am I going to go to Kleinfeld's, are we going to make sure the wedding is near hotels, the airport, have I thought about making my own dress, and on and on and on and on.

In the beginning, we both kinda got wrapped up in all the silly wedding stuff. As time goes by, I do more and more research and hear more and more ridiculousness from potential wedding guests. I am, at this point, over it. I have decided that six month's rent for an open bar is absolutely absurd even if the venue is near the airport. We are not going to spend a zillion dollars for some stuffy affair that is so not us because it would be more convenient for some people who have never traveled to visit us before and will likely never travel to visit us again. If our venue is too far from the airport or too late in the year, they can stay home.

I will be making some concessions. I will probably wear a white dress, although I will not spend four figures on said dress. I will invite a bunch of people who have nothing to do with my life on a daily (montly, yearly) basis but I will not spend $150 on each of their dinners. I'm not going to spend my life savings to impress a bunch of people who live in other parts of this country and world with whom we have no regular contact. It's all incredibly illogical to me.

I take my relationship, my fiance and my life plans very seriously but, as it turns out, our life is dictated by the decisions we make, not by the convenience of our plans for our extended families. We do not live near either of our families and, although we speak to our parents on a daily basis, they have very little to do with the decisions we make and the way we live our lives. We love each other and respect each other and make a pretty good team. None of this will change because we are married.

So - we are going to have a party. One where a friend marries us and we will eat popcorn and gravy fries and keep some of our money in our savings account. I don't think most of our family will get it, some of them will make jokes and have lots of criticism to share between them but I have decided that's not important. We are going to have a wedding to make our parents happy but we're going to do it in a way that makes us happy.

Phew!

Crohnie