The Crappy Week Continues...

I'm still having major digestive problems but the headaches seem to have stopped. I am convinced, although my doctor finds it strange, that the headaches begin a day or two after my injection and continue for a few days. I could deal with headaches if they came with some sort of relief from the pain and other symptoms but that's just not the case.

I'm looking forward to going back home for Thanksgiving this week to spend some time with the family and relax a bit. Hopefully the drive goes smoothly and the visit goes smoothly. I know I will suffer after the turkey and trimmings but I will eat them anyway and try not to stress too much about anything.

I've decided that I will try one more injection on Monday. If things don't improve after that one it's time to call the doctor. Enough's enough.

Aaaaaaaarrrrggggghhhh!

I'm so irritated and frustrated and angry! I thought the Humira was working. I suppose I'm being punished for getting my hopes up.

I have had one of the worst weeks ever. It all started with the giantest migraine ever on Sunday and went downhill from there. I'm back to not being able to eat anything without having to run to the bathroom but, this week, the trips to the bathroom are accompanied by pain like I've never had before - horrible, crampy pain that sometimes turns into burning then stabbing pain. Just in case that wasn't enough for me to deal with, I'm blessed with daily headaches that seem to get really intense in the afternoon then either go away, or don't. Also, although I'm not taking any meds orally, I am having nausea like I haven't had since I was on 10 pills/day.

I don't know what's going on in there. My doctor wants to wait a few more weeks to make sure the Humira is working. I'm so over it.

Huge Pain In The A..

Today was incredibly discouraging. I wasn't feeling great when I got up but I left for work anyway. Halfway to the office I started having some pain which could mean disaster or could just be some pain. There's no telling. I was in between train stops when it got really intense. I've been sick every day for a long time now but the pain was always dull and achey (thank goodness) until recently. Today it was burning, stabbing pain that almost brought me to my knees on the train. I spent the next ten minutes trying to stay upright and devise a plan. When the train finally stopped, I got off to seek refuge (a bathroom).

Anyone who has had an attack in an inopportune location knows the minutes until you get to a bathroom are the longest minutes since the beginning of time. Here, in New York, there is an added element of anxiety because there are guards at ever door, locks on every bathroom and rules regarding who can access the key. I quickly found a clean (bonus!) bathroom and snuck into it. I spent eons inside as I still had a 15 minute ride to work from the bathroom and wanted to make sure I would make it alive. Eventually I made it back to the train and then to the office.

I tried not to let my crappy morning ruin the rest of the day but the pain and exhaustion had other plans and the day was pretty much a write-off. The headache came in the afternoon and has yet to leave.

I've noticed an increase in the intensity of my pain since I started Humira. I am wondering if this indicates a narrowing of the intestine somewhere in there but the liquid nature of my -you know- made it easy for it to pass through. Now that the nature of my -you know what- is no longer always liquid, it's causing horrible pain. Anyone?